This is a poignant true story of a boy born in India, in the nineties, who migrates to the U.S. at four months of age, who has been dealing with a dangerous, initially life-threatening craniofacial genetic disorder, since his birth. This is an amazing and inspiring story that catalogs this boy’s fight for survival in his early years, his development over the years till now, and his wins as well as losses along the way. The story is narrated in a light, conversational, sometimes humorous, sometimes heart-wrenching way, and includes many writing excerpts from the hero of this story himself and his sister in arms, in the form of essays and stories written by them at different ages. Suman has shared her love of wild life and her close encounters with them, and even mixed some philosophical meanderings in this saga, as she ponders the bigger picture in which we are barely a speck.
Suman aspires to bring this story in front of all families who adore children. She hopes that this true story of a brave boy fighting the big bad world on the one hand, and dealing with his ever-changing face and growing pains on the other, will inspire parents, care-takers, and youths who are living with genetic disorders. It starts as the author's story being his main life-support, but fast becomes the boy’s story, as he becomes more aware. Every chapter represents a significant set of highlights and events chronicling the trials, tribulations and successes of every year in his life so far. It is an engaging and extremely well-written story that is capturing the interest of non-fiction readers worldwide.